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    Cure SMA – Team Kayley Night 2017

    The Sioux Falls Storm faced off against the Arizona Rattlers in their 2017 season opener. This was the second annual Team Kayley night that benefitted Cure SMA. The event helped raise $10,899 for SMA research, family support (such as an equipment pool) and care packages for newly diagnosed families. Photo credits: Tslat Media and Event Photography

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    TEAM KAYLEY NIGHT – BENEFIT FOR CURE SMA

    My name is Kayley Shade and I was born with a disease called Spinal Muscular Atrophy (SMA). A disease that will slowly deteriorate all of my muscles, meaning that I have never walked and am wheelchair bound. My life expectancy was 2 years old; I am now 24, a college graduate with a degree in marketing, and I am the Director of Social Media Marketing for the Sioux Falls Storm. At 18 months old, I was diagnosed with SMA Type 2. Due to this debilitating disease, I have scoliosis (curvature of my spine) that required me to have a surgery at 7 years old. During surgery metal rods were placed…

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    Style Encore

    Thank you Style Encore – Sioux Falls, SD for the donation of a cross-body Coach purse and a $25 gift card for the silent auction on February 17th. Spinal Muscular Atrophy is a disease that affects the motor nerve cells in the spinal cord. SMA is the number one genetic cause of death for infants in the USA. If you or your place of business would like to participate in this year’s event, please email me at kayley@siouxfallsstorm.com.

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    WE ARE TEAM KAYLEY

    WE ARE TEAM KAYLEY ⚡️ In 22 days, we will take the field to start the 2017 season, to make a run at championship #11, but most importantly, we will raise funds to Uncover A Cure for Spinal Muscular Atrophy (SMA). Last year during the First Annual Team Kayley night, we raised over $5,000. This year we will be raising funds by: Hosting a silent auction  Doing a Touchdown/Sack sponsor  The ThunderBall Toss  Ticket sales  If you would like to help us raise funds for a disease that has no cure, please contact me at kayley@siouxfallsstorm.com!

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    Silent Auction Item

    The Sioux Falls Storm in conjunction with Cure SMA will be hosting a silent auction at their home opener on February 17th. We are excited to announce our first item from Emily Rommann, a Keep Collective distributor, is donating two (2) bracelets. One being a Team Kayley bracelet and the other is an Inspire. Both are a $50 value and have genuine leather bands and silver charms. Emily will also be ordering a Storm bracelet for fans who order! For every “Storm” bracelet purchased today-February 17, she will donate $5 to Cure SMA in honor of Team Kayley night.  If you would like a Storm bracelet, head over to her website https://www.keepcollective.com/with/emilyrommann or contact her via Facebook…

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    Keep Collective

    The Sioux Falls Storm in conjunction with Cure SMA will be hosting a silent auction at their home opener on February 17th. We are excited to announce our first item from Emily Rommann, a Keep Collective distributor, is donating two (2) bracelets. One being a Team Kayley bracelet and the other is an Inspire. Both are a $50 value and have genuine leather bands and silver charms. Emily will also be ordering a Storm bracelet for fans who order! For every “Storm” bracelet purchased today-February 17, she will donate $5 to Cure SMA in honor of Team Kayley night.  If you would like a Storm bracelet, head over to her website https://www.keepcollective.com/with/emilyrommann or contact her via Facebook…

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    SMA Type 2

    In SMA Type 2, the course of the disease is stable or slowly progressing, but death before the age of 20 is frequent. What a scary statement. I myself have SMA Type 2, I am now 24 and still have a lot of fight left in me! Would you like to help uncover a cure for SMA? Email me at kayley@siouxfallsstorm.com. #TeamKayley #CureSMA

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    Don’t count the days; make the days count

    “Don’t count the days; make the days count.” – Muhammad Ali I was born with a disease called Spinal Muscular Atrophy (SMA). A disease that will slowly deteriorate all of my muscles, meaning that I have never walked and am wheelchair bound. My life expectancy was 2 years old; I am now 24, a college graduate, and I am the Director of Social Media Marketing for the Sioux Falls Storm! I have scoliosis (curvature of my spine) that required me to have a surgery at 7 years old. During surgery metal rods were placed down my spine to straighten and prevent further deterioration. At 9 years old, I was hospitalized…