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    Cure SMA – Team Kayley Night 2017

    The Sioux Falls Storm faced off against the Arizona Rattlers in their 2017 season opener. This was the second annual Team Kayley night that benefitted Cure SMA. The event helped raise $10,899 for SMA research, family support (such as an equipment pool) and care packages for newly diagnosed families. Photo credits: Tslat Media and Event Photography

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    TEAM KAYLEY NIGHT – BENEFIT FOR CURE SMA

    My name is Kayley Shade and I was born with a disease called Spinal Muscular Atrophy (SMA). A disease that will slowly deteriorate all of my muscles, meaning that I have never walked and am wheelchair bound. My life expectancy was 2 years old; I am now 24, a college graduate with a degree in marketing, and I am the Director of Social Media Marketing for the Sioux Falls Storm. At 18 months old, I was diagnosed with SMA Type 2. Due to this debilitating disease, I have scoliosis (curvature of my spine) that required me to have a surgery at 7 years old. During surgery metal rods were placed…