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    Spinraza Plans

    These last few months have flown by and we’ve had some exciting things happening! Back in February, I decided to start the process of starting to receive the newest and ONLY FDA approved treatment for Spinal Muscular Atrophy (SMA) called Spinraza. Spinraza slows the disease’s progression and in many cases, improves the strength of individuals with SMA. It is injected into the fluid surrounding the spinal cord (spinal fluid) through a needle which is inserted into the lower back every 4 months for the rest of the persons life.