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    2019 Walk N Roll

    Friends, The Minnesota Chapter of Cure SMA will be holding its first ever 2019 Walk-n-Roll in Sioux Falls, South Dakota on September 28, 2019! Help me make this event be as big as it can be and help us find a cure for SMA! Please join my team and walk with my family and I in September! http://events.curesma.org/site/TR/Walk-n-Roll/General?team_id=7556&pg=team&fr_id=3571&fbclid=IwAR2VPEbzCcbJNM_H4hVtQjxcWbIvx77_1BltmTbpsTOIKPUPnf3qg73YqMI

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    Injection 3

    Spinraza injection #3– Complete ✅ Big Mama and I went in today for my third injection and we are happy to report that everything went great! The procedure takes about 10 minutes and then we’re out the door! I am now done with my every 2 week injections and the next when will be in a month (Aug 23). Then after that they will be every 4 months.

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    Injection #2

    Today was injection #2! Kalin and I are ecstatic that everything went off without a hitch! They were able to aspirate the 5cc of spinal fluid and replace it with Spinraza! The procedure was done in interventional radiology since the last one didn’t go as planned. Now that everything went a-ok, we should be able to do the rest of the injections in clinic. So far feeling pretty good, no pain at the injection site. Hopefully from here on out we will start seeing the gains that can be made with the help of Spinraza!