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The Journey Bigins

Today was surgery day! We arrived at the surgical towers around 7:45 AM and didn’t go in for surgery until 12:45.

From what I’m told surgery lasted 40 minutes. There was no hole in the catheter, he said when he cut me open he pushed syringe of saline to see where leak was but that it went in just fine but noticed it was pooling right outside of the canel in my back. So he made that part more stable by adding epoxy and said it was kind of a hard push but everything went where it was supposed to!

I received my first dose of Spinraza! So in two weeks I’ll get the second loading dose. So far I feel no different but am excited to see what gotta drug will do for me!

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