“Don’t count the days; make the days count.” – Muhammad Ali
I was born with a disease called Spinal Muscular Atrophy (SMA). A disease that will slowly deteriorate all of my muscles, meaning that I have never walked and am wheelchair bound. My life expectancy was 2 years old; I am now 24, a college graduate, and I am the Director of Social Media Marketing for the Sioux Falls Storm!
I have scoliosis (curvature of my spine) that required me to have a surgery at 7 years old. During surgery metal rods were placed down my spine to straighten and prevent further deterioration. At 9 years old, I was hospitalized for 3 months in the PICU. During that time, I required a tracheostomy which assists my breathing.
Though I have been through many life altering events, I will always make my days count.
I hope that one day there will be a cure for SMA. But until then, I will live my life the best that I can and enjoy the ride! Please join me on February 17th at the Sioux Falls Storm home opener to raise awareness and funds to help others in South Dakota. Call Jim at 605.610.5902 or message me if you or your place of business would like to help. #UncoverACure #TeamKayley